Rough week.

a week ago…

I didn’t have treatment last week due to low WBC count. I was tired, but not exhausted. Every day felt closer to a good day, like if I could just rest a little I would wake up feeling fantastic. I didn’t, of course. But it was a hopeful week.

Monday I went for treatment and any thought of feeling ok went right out the window. This week has been ROUGH to say the least. It didn’t help that I had a colonoscopy to prep for. That went well. Now I’m up at 2:30 am in pain and unable to sleep. Hungry, but nauseous. Terrible headache.

I keep reminding myself that this too shall pass. Nothing lasts forever.

this system is broken

Insurance is so frustrating to deal with. My doctor ordered an MRI, two CT scans and a bone scan in early December. The MRI was approved, but the other three were denied. I filed an appeal on December 16. They said that I would receive proof of appeal in the mail but that they would not notify my doctor. Any additional documentation supporting my claim, however, should come directly from the doctor and not from me.

It has been over three weeks, and I have received nothing.

I called today and was told that there was no appeal. After an hour on the phone, she finally found my appeal and said that it had already been closed. After review, they reversed their decision and decided to approve the tests. BUT, they had to be completed within a certain time frame.

I told her I never received that information, and she said that notifying me was not necessary. So, no update from them at all. No letter in the mail, no email, no call, no notification to my doctor. How am I supposed to know to schedule the tests? What is their time frame? I requested written confirmation, and she said they were unable to provide that.

I called my doctor, and their system still shows the tests as denied. They are going to try and reauthorize and let me know.

Can you imagine the number of tests and procedures that the insurance company doesn’t have to cover simply because they make the process so difficult to navigate?

Chemo Port

I had my chemo port put in last Wednesday. It was an easy procedure since I was under general anesthesia. The surgery lasted almost two hours, but with prep and recovery I was at the hospital for six hours. Recovery has been easy with no complications. In case you are scheduled for this procedure and don’t know what to expect, this is my port the day after surgery.

Honestly, my neck hurt worse than the port in my chest. One more step forward…