It’s been almost two weeks since I’ve written here, but every day feels the same. I think I might be feeling better and then I do something – dishes, laundry, walk outside… and the fatigue hits me. The symptoms have definitely been getting worse over the past couple of months and I’m tired.

Something new that just started happening the last week is that I’ll get the chills and start shaking. My doctor said to go to the emergency room if my temperature goes over 100, so I always check when I get the chills. But no fever. My temp has been dropping to 95. I’ve been using a heating pad or taking a hot bath to bring it back up and once it gets close to 97 I’ll stop shaking and be fine.

These photos were all taken on the same day and are pretty representative of a typical day for me. I got up and got ready, feeling hopeful about the day (1st pic). Had to go to the center for treatment and was feeling pretty tired, but still holding it together (2nd pic). Came home and crashed – tired but also in a lot of pain: abdominal pain, headache, body aches, chills, neuropathy.

I have one more session of the Taxol + immunotherapy and then we are switching over to AC + immunotherapy. I’m not sure what to expect. From what I’ve read online AC can cause more nausea, but it’s hard to say. These drugs have such a wide range of side effects, and they affect everyone to differing degrees.

I’m going to hope for the best and keep on keeping on…